{"id":12446,"date":"2025-09-11T12:43:27","date_gmt":"2025-09-11T10:43:27","guid":{"rendered":"https:\/\/www.alani.es\/?p=12446"},"modified":"2025-09-11T12:44:20","modified_gmt":"2025-09-11T10:44:20","slug":"we-join-the-world-day-of-duchenne-every-gesture-adds-hope","status":"publish","type":"post","link":"https:\/\/www.alani.es\/en\/nos-unimos-al-dia-mundial-de-duchenne-cada-gesto-suma-esperanza\/","title":{"rendered":"We join the World Duchenne Day: every gesture adds hope"},"content":{"rendered":"<p class=\"wp-block-paragraph\">The past <strong>September 7th<\/strong> It was held <strong>World Duchenne Day<\/strong>, A very special date that seeks to raise awareness about a little-known disease that profoundly affects the lives of thousands of children and their families: <strong>Duchenne muscular dystrophy<\/strong>. This genetic and degenerative condition causes a progressive loss of muscle strength, increasingly limiting the autonomy of those who suffer from it.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Behind every diagnosis are stories of overcoming obstacles, families that struggle every day, and children who deserve a future full of opportunities. <strong>Alani Professional Hygiene<\/strong> We want to join our voices with those of all of them, because we believe that awareness is the first step towards advancing the research and the support that they so desperately need.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">Small actions that make a difference<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">We can all contribute our share to transforming the lives of those who live with Duchenne:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Make a donation with Bizum<\/strong> to the number 00949.<\/li>\n\n\n\n<li><strong>Join the Teaming group<\/strong> in <a>www.teaming.net<\/a> and collaborate from just 1\u20ac per month.<\/li>\n\n\n\n<li><strong>Dressing in red and sharing it on social media<\/strong>, By generating visibility and awareness.<\/li>\n\n\n\n<li><strong>Using the Ratoncito P\u00e9rez app<\/strong> in affiliated dental clinics, supporting research in a simple way.<\/li>\n\n\n\n<li><strong>Create a solidarity challenge in <a>migranodearena.org<\/a><\/strong> and encourage family and friends to join in.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">Together we can change the future<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Every gesture, however small it may seem, is a step forward. Speaking out about Duchenne means giving a voice to those who need it, bringing support closer to families, and paving the way for new opportunities in research and treatment.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In <strong>Alani Professional Hygiene<\/strong> We believe that solidarity is a value that unites us and drives us to be better. That is why, on this World Duchenne Day, we want to remind ourselves that <strong>The sum of many hands and hearts can transform hope into reality<\/strong>.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES-1024x576.jpg\" alt=\"\" class=\"wp-image-12447\" title=\"\" srcset=\"https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES-1024x576.jpg 1024w, https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES-300x169.jpg 300w, https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES-768x432.jpg 768w, https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES-1536x864.jpg 1536w, https:\/\/www.alani.es\/wp-content\/uploads\/2025\/09\/Unete-al-DesafioDuchenne-ES.jpg 1920w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>","protected":false},"excerpt":{"rendered":"<p>El pasado 7 de septiembre se celebr\u00f3 el D\u00eda Mundial de Duchenne, una fecha muy especial que busca dar visibilidad a una enfermedad poco conocida, pero que afecta profundamente la vida de miles de ni\u00f1os y sus familias: la Distrofia Muscular de Duchenne. Esta condici\u00f3n gen\u00e9tica y degenerativa provoca una p\u00e9rdida progresiva de la fuerza [&hellip;]<\/p>\n","protected":false},"author":8,"featured_media":12448,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[3],"tags":[120,104,119,123,121,122],"class_list":["post-12446","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias-1","tag-apoyo","tag-compromiso","tag-duchenne","tag-enfermedad","tag-esperanza","tag-investigacion"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/posts\/12446","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/comments?post=12446"}],"version-history":[{"count":2,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/posts\/12446\/revisions"}],"predecessor-version":[{"id":12451,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/posts\/12446\/revisions\/12451"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/media\/12448"}],"wp:attachment":[{"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/media?parent=12446"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/categories?post=12446"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.alani.es\/en\/wp-json\/wp\/v2\/tags?post=12446"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}